Overview
Headquarters
Les Carroz, Auvergne-Rhône-Alpes
Category
Vanille-Fraise (Sturge-Weber disease French association)
Vanille-Fraise (Sturge-Weber disease French association) Through the example of our daughter Julia with Sturge-Weber syndrome, the association's mission is to educate the public authorities about this rare and serious disease. Our goals will be to help research, find the best treatments, and share our fight to help those affected by this disease.